Thank you for your interest in submitting a letter to the RKD & Me campaign! Your letter will be an important part of RKD & Me and instrumental in shaping what you want the public to know about what it’s like to live with a rare kidney disease. Here are some questions to help get you started as you write your letter.
- What was it like to first learn about your diagnosis?
- What were some of the moments when you felt most challenged? When did you feel proud? When did you feel inspired?
- What kind of support did you have along the way? What kind of support did you wish you had?
- What were the moments you recall when your disease started to impact your daily life and decision-making?
- How did RKD impact your family, relationships, work, career, hobbies, or other areas of life that are meaningful to you?
- What is one thing you would want your younger self to know about life right now?
