Get Inspired to Write Your Letter

Thank you for your interest in submitting a letter to the RKD & Me campaign! Your letter will be an important part of RKD & Me and instrumental in shaping what you want the public to know about what it’s like to live with a rare kidney disease. Here are some questions to help get you started as you write your letter.

  • What was it like to first learn about your diagnosis?
  • What were some of the moments when you felt most challenged? When did you feel proud? When did you feel inspired?
  • What kind of support did you have along the way? What kind of support did you wish you had?
  • What were the moments you recall when your disease started to impact your daily life and decision-making?
  • How did RKD impact your family, relationships, work, career, hobbies, or other areas of life that are meaningful to you?
  • What is one thing you would want your younger self to know about life right now?
“It might be hard to see it now, but it’s going to be OK. There are things you can do, people you will meet on your journey, and a lot of great things coming down the road.” – Kimberly H.