Get Inspired to Write Your Letter

Thank you for your interest in submitting a letter to the RKD & Me campaign! Your letter will be an important part of RKD & Me and instrumental in shaping what we want the public to know about what it’s like to live with a rare kidney disease. Here are some questions to help get you started in writing a letter to your younger self.

  • What was it like to first learn about your RKD diagnosis, or the diagnosis of someone you love?
  • What were some of the moments when you felt most challenged living with, or caring for someone with RKD? When did you feel proud? When did you feel inspired?
  • What kind of support did you have along the way? What kind of support did you wish you had?
  • What were the moments you recall when your disease, or the disease of your loved one, started to impact your daily life and decision-making?
  • How did RKD impact your family, relationships, work, career, hobbies, or other areas of life that are meaningful to you?
  • Is there anything new or interesting that you’ve learned about yourself since your diagnosis, or the diagnosis of your loved one?
  • What is one thing you would want your younger self to know about life right now?
“It might be hard to see it now, but it’s going to be OK. There are things you can do, people you will meet on your journey, and a lot of great things coming down the road.” – Kimberly H.