If you or someone you love is newly diagnosed or living with a rare kidney disease, and you need more information, we encourage you to connect with the following organizations.

Take a moment to explore the support groups, tools, resources, and communities below.

For People Living With Rare Kidney Disease:

For Healthcare Providers:

For your friends and family, they’re coping with your new diagnosis, too. They will go through their own grieving process just like you did. So, give them the time and space that they need as well