In a world where millions of people live with chronic kidney disease, commonly known as CKD, rare kidney diseases have been given little attention and are often misunderstood.
Travere Therapeutics, NephCure and IgA Nephropathy Foundation have teamed up to change that and increase awareness of rare kidney disease — or RKD — through the stories of people living with RKD and caregivers told in the form of powerful letters written to their younger selves.
Co-Created with the RKD Community
Created together with the rare kidney disease community through a nationwide listening tour, RKD & Me is a collaboration to raise awareness of RKD — bringing forward what the RKD community wants people to understand about what it’s like to live with a rare form of a widespread condition.
Many people living with RKD find it hard to talk to their loved ones, coworkers and friends about their diagnosis. But every person living with RKD has a unique story to share. No one living with RKD should feel misunderstood in their journey. Our hope is that as this movement grows, people living with RKD can impart the perspectives of their own journeys onto others, and lighten the burden of feeling isolated or alone.
How to Join the Movement
If you or someone you know is living with RKD, we invite you to write and submit a letter.
Read the powerful letters from people living with RKD and caregivers, and follow along on social media at #RKDandMe.
